ROADMAP's Interactive Data Cube

AD Outcomes / Data Sources	LFANLFAN	LFBCLFBC	LZAMLZAM	LZANLZAN	IPCIIPCI	AUHAUH	SIDIAPSIDIAP	SIDIGISIDIGI	ReDeGiReDeGi	H70H70	CaPSCaPS	CFASCFAS	CFASIICFASII	ELSAELSA	ICICLE_PDICICLE_PD	Whitehall_IIWhiteha...	G_ScotlandG_Scotland	AirwaveAirwave	UK_BiobankUK_Biobank	EPIC_NorfolkEPIC_No...	MRC_NSHDMRC_NSHD	BDRBDR	Cam_CANCam_CAN	LBC1936LBC1936	Million_WomenMillion...	AMPLEAMPLE	OPDC_DiscoveryOPDC_Di...	CygnusCygnus	CHARIOTCHARIOT	TRACK_HDTRACK_HD	NIMRODNIMROD	PROTECTPROTECT	SABRESABRE	NICOLANICOLA	MementoMemento	PSIPSI	Thessaloniki_cohortThessal...	The_4C_StudyThe_4C_...	SNAC_KSNAC_K	Rotterdam_StudyRotterd...	ReGAIReGAI	RECALL_HNRRECALL_HNR	Pre_AlPre_Al	PharmaCogPharmaCog	PerugiaPerugia	OsloOslo	NEST_DDNEST_DD	MRC_CFASMRC_CFAS	Milan_cohortMilan_c...	MemoraMemora	MCI_GOMCI_GO	ActifcareActifcare	ADCADC	AddNeuroMedAddNeur...	AgeCoDeAgeCoDe	AHRAHR	DEM_PREVDEM_PREV	AntwerpAntwerp	ARWIBOARWIBO	Athens_CohortAthens_...	CogLausCogLaus	CAIDECAIDE	CBASCBAS	CoimbraCoimbra	DCNDCN	DCRDCR
Clinical diagnosis Clinical diagnosis
Subjective Memory ComplaintSubjective Memory Complaint
Subjective Cognitive ComplaintSubjective Cognitive Complaint
Mild Cognitive Impairment (MCI)Mild Cognitive Impairment (...
Amnestic MCI (aMCI)Amnestic MCI (aMCI)
Non-amnestic MCI (naMCI)Non-amnestic MCI (naMCI)
DementiaDementia
Alzheimer's diseaseAlzheimer's disease
Prodromal AD (pAD)Prodromal AD (pAD)
Preclinical ADPreclinical AD
Other dementia subtypes (not AD) Other dementia subtypes (no...
Vascular dementiaVascular dementia
Mixed dementiaMixed dementia
Frontotemporal dementiaFrontotemporal dementia
Dementia with Lewy bodiesDementia with Lewy bodies
Dementia in other diseases classified elsewhereDementia in other diseases ...
Disease severity and progression Disease severity and progre...
Staging severity of dementiaStaging severity of dementia
Global improvement/stability/ declineGlobal improvement/stabilit...
Cognitive abilities Cognitive abilities
MemoryMemory
Language and communicationLanguage and communication
Visuospatial abilityVisuospatial ability
Attention/Executive functionsAttention/Executive functions
IntelligenceIntelligence
Getting lost in own homeGetting lost in own home
Not recognising familyNot recognising family
Spatial awarenessSpatial awareness
Conscious awarenessConscious awareness
Repeated questionsRepeated questions
Losing the sense of who you areLosing the sense of who you...
OthersOthers
Functional ability and independence Functional ability and inde...
Clinical judgment on dependence/independenceClinical judgment on depend...
Hygiene/bathingHygiene/bathing
DressingDressing
ToiletingToileting
TransferringTransferring
WalkingWalking
MobilityMobility
EatingEating
Ability to use telephoneAbility to use telephone
Shopping capacityShopping capacity
Food preparationFood preparation
HousekeepingHousekeeping
LaundryLaundry
Transportation/Driving capacityTransportation/Driving capa...
Responsibility for own medicationsResponsibility for own medi...
Financial capacityFinancial capacity
Management of everyday technologyManagement of everyday tech...
Supervision (preventing dangerous events)Supervision (preventing dan...
CommunicationCommunication
Social engagementSocial engagement
Behavioural and neuropsychiatric symptoms Behavioural and neuropsychi...
Sleep disturbance/change in sleep-wake patterns/night time behavioursSleep disturbance/change in...
Appetite/ eating disordersAppetite/ eating disorders
Change in physical activityChange in physical activity
AggressionAggression
AgitationAgitation
IrritabilityIrritability
DisinhibitionDisinhibition
Motor disturbancesMotor disturbances
EuphoriaEuphoria
DelusionsDelusions
HallucinationsHallucinations
DepressionDepression
AnxietyAnxiety
DysphoriaDysphoria
Apathy/indifferenceApathy/indifference
SightSight
Emotional issuesEmotional issues
Sensory changes and challengesSensory changes and challenges
Swallow reflexSwallow reflex
Self-efficacySelf-efficacy
Medical investigations Medical investigations
Genetic biomarkers Genetic biomarkers
APOE e4APOE e4
Other variantsOther variants
Amyloid Biomarkers Amyloid Biomarkers
CSFCSF
PETPET
PlasmaPlasma
Tau Biomarkers Tau Biomarkers
CSFCSF
PETPET
PlasmaPlasma
Functional neuroimaging biomarkers Functional neuroimaging bio...
FDG-PETFDG-PET
Structural neuroimaging biomarkers Structural neuroimaging bio...
Whole-brain volume change/atrophy rateWhole-brain volume change/a...
Hippocampal/medial temporal lobe volume change/atrophy rateHippocampal/medial temporal...
Ventricular volume change/atrophy rateVentricular volume change/a...
Others Others
Other genetic, amyloid, tau, neuroimaging biomarkersOther genetic, amyloid, tau...
Physical examinationPhysical examination
Neurological examinationNeurological examination
Assessments by health care professional Assessments by health care ...
Date and frequency of healthcare appointmentsDate and frequency of healt...
Date and frequency that tests are administeredDate and frequency that tes...
Use of healthcare and social services Use of healthcare and socia...
Health services costsHealth services costs
Access to information related with the diseaseAccess to information relat...
Patient-related items Patient-related items
Living accommodationLiving accommodation
Patient health care resource utilisationPatient health care resourc...
Copayment patientCopayment patient
Caregiver-related items Caregiver-related items
Caregiver work status, impact, work days missedCaregiver work status, impa...
Caregiver sleepCaregiver sleep
Caregiver healthcare resource utilizationCaregiver healthcare resour...
Personal financial itemsPersonal financial items
Formal caregiver timeFormal caregiver time
Informal caregiver timeInformal caregiver time
Therapeutic treatment Therapeutic treatment
Starting medication for symptomatic ADStarting medication for sym...
Starting antipsychotic medicationStarting antipsychotic medi...
Other medications and dosageOther medications and dosage
Side effectsSide effects
Medical device useMedical device use
Other therapeutic interventionsOther therapeutic intervent...
Significant disease-related life events Significant disease-related...
Ability to driveAbility to drive
HospitalisationHospitalisation
InstitutionalisationInstitutionalisation
Need for assistance at homeNeed for assistance at home
Need for full time careNeed for full time care
SafetySafety
Premature loss of paid employmentPremature loss of paid empl...
Respite care take upRespite care take up
Sick leaveSick leave
Welfare support (monetary support)Welfare support (monetary s...
Guardianship measuresGuardianship measures
Patient quality of life Patient quality of life
Self-reported QoL/health utilitySelf-reported QoL/health ut...
Proxy-reported QoL/health utilityProxy-reported QoL/health u...
Impact on relationships and marriage strain/break upImpact on relationships and...
Maintaining ability to participate in hobbiesMaintaining ability to part...
Quality of the carer's and family's lives Quality of the carer's and ...
Caregiver-perceived burdenCaregiver-perceived burden
Caregiver co-morbiditiesCaregiver co-morbidities
Caregiver Quality of LifeCaregiver Quality of Life
Spouses' "duty" to careSpouses' "duty" to care
Quality of the patient-caregiver relationshipQuality of the patient-care...
Caregiver social supportCaregiver social support
Mortality and comorbidity Mortality and comorbidity
MortalityMortality
StrokeStroke
Cerebrovascular diseaseCerebrovascular disease
Coronary heart diseaseCoronary heart disease
DiabetesDiabetes
Other vascular diseasesOther vascular diseases
ObesityObesity
Parkinson's diseaseParkinson's disease
EpilepsyEpilepsy
Other neurological disordersOther neurological disorders
CancerCancer
Musculoskeletal diseasesMusculoskeletal diseases
Respiratory diseasesRespiratory diseases
Genitourinary diseasesGenitourinary diseases
Renal diseasesRenal diseases
Eye-related impairmentsEye-related impairments
Hearing impairmentsHearing impairments
Fractures and other traumaFractures and other trauma
DeliriumDelirium
Neuropsychiatric disordersNeuropsychiatric disorders
Frequent infectionsFrequent infections
FrailtyFrailty

AD Outcomes / Data Sources	CaPSCaPS	CFASCFAS	CFASIICFASII	ELSAELSA	ICICLE_PDICICLE_PD	Whitehall_IIWhiteha...	G_ScotlandG_Scotland	AirwaveAirwave	UK_BiobankUK_Biobank	EPIC_NorfolkEPIC_No...	MRC_NSHDMRC_NSHD	BDRBDR	Cam_CANCam_CAN	LBC1936LBC1936	Million_WomenMillion...	AMPLEAMPLE	OPDC_DiscoveryOPDC_Di...	CygnusCygnus	CHARIOTCHARIOT	TRACK_HDTRACK_HD	NIMRODNIMROD	PROTECTPROTECT	SABRESABRE	NICOLANICOLA	NEST_DDNEST_DD	MRC_CFASMRC_CFAS	AddNeuroMedAddNeur...	DCRDCR	LFANLFAN	LFBCLFBC	LZAMLZAM	LZANLZAN	IPCIIPCI	PSIPSI	The_4C_StudyThe_4C_...	Rotterdam_StudyRotterd...	ActifcareActifcare	ADCADC	AHRAHR	ReGAIReGAI	PharmaCogPharmaCog	PerugiaPerugia	Milan_cohortMilan_c...	ARWIBOARWIBO	SIDIAPSIDIAP	SIDIGISIDIGI	ReDeGiReDeGi	DEM_PREVDEM_PREV	MementoMemento	Pre_AlPre_Al	MemoraMemora	RECALL_HNRRECALL_HNR	AgeCoDeAgeCoDe	DCNDCN	SNAC_KSNAC_K	H70H70	AntwerpAntwerp	OsloOslo	MCI_GOMCI_GO	Thessaloniki_cohortThessal...	Athens_CohortAthens_...	AUHAUH	CogLausCogLaus	CAIDECAIDE	CBASCBAS	CoimbraCoimbra
Clinical diagnosis Clinical diagnosis
Subjective Memory ComplaintSubjective Memory Complaint
Subjective Cognitive ComplaintSubjective Cognitive Complaint
Mild Cognitive Impairment (MCI)Mild Cognitive Impairment (...
Amnestic MCI (aMCI)Amnestic MCI (aMCI)
Non-amnestic MCI (naMCI)Non-amnestic MCI (naMCI)
DementiaDementia
Alzheimer's diseaseAlzheimer's disease
Prodromal AD (pAD)Prodromal AD (pAD)
Preclinical ADPreclinical AD
Other dementia subtypes (not AD) Other dementia subtypes (no...
Vascular dementiaVascular dementia
Mixed dementiaMixed dementia
Frontotemporal dementiaFrontotemporal dementia
Dementia with Lewy bodiesDementia with Lewy bodies
Dementia in other diseases classified elsewhereDementia in other diseases ...
Disease severity and progression Disease severity and progre...
Staging severity of dementiaStaging severity of dementia
Global improvement/stability/ declineGlobal improvement/stabilit...
Cognitive abilities Cognitive abilities
MemoryMemory
Language and communicationLanguage and communication
Visuospatial abilityVisuospatial ability
Attention/Executive functionsAttention/Executive functions
IntelligenceIntelligence
Getting lost in own homeGetting lost in own home
Not recognising familyNot recognising family
Spatial awarenessSpatial awareness
Conscious awarenessConscious awareness
Repeated questionsRepeated questions
Losing the sense of who you areLosing the sense of who you...
OthersOthers
Functional ability and independence Functional ability and inde...
Clinical judgment on dependence/independenceClinical judgment on depend...
Hygiene/bathingHygiene/bathing
DressingDressing
ToiletingToileting
TransferringTransferring
WalkingWalking
MobilityMobility
EatingEating
Ability to use telephoneAbility to use telephone
Shopping capacityShopping capacity
Food preparationFood preparation
HousekeepingHousekeeping
LaundryLaundry
Transportation/Driving capacityTransportation/Driving capa...
Responsibility for own medicationsResponsibility for own medi...
Financial capacityFinancial capacity
Management of everyday technologyManagement of everyday tech...
Supervision (preventing dangerous events)Supervision (preventing dan...
CommunicationCommunication
Social engagementSocial engagement
Behavioural and neuropsychiatric symptoms Behavioural and neuropsychi...
Sleep disturbance/change in sleep-wake patterns/night time behavioursSleep disturbance/change in...
Appetite/ eating disordersAppetite/ eating disorders
Change in physical activityChange in physical activity
AggressionAggression
AgitationAgitation
IrritabilityIrritability
DisinhibitionDisinhibition
Motor disturbancesMotor disturbances
EuphoriaEuphoria
DelusionsDelusions
HallucinationsHallucinations
DepressionDepression
AnxietyAnxiety
DysphoriaDysphoria
Apathy/indifferenceApathy/indifference
SightSight
Emotional issuesEmotional issues
Sensory changes and challengesSensory changes and challenges
Swallow reflexSwallow reflex
Self-efficacySelf-efficacy
Medical investigations Medical investigations
Genetic biomarkers Genetic biomarkers
APOE e4APOE e4
Other variantsOther variants
Amyloid Biomarkers Amyloid Biomarkers
CSFCSF
PETPET
PlasmaPlasma
Tau Biomarkers Tau Biomarkers
CSFCSF
PETPET
PlasmaPlasma
Functional neuroimaging biomarkers Functional neuroimaging bio...
FDG-PETFDG-PET
Structural neuroimaging biomarkers Structural neuroimaging bio...
Whole-brain volume change/atrophy rateWhole-brain volume change/a...
Hippocampal/medial temporal lobe volume change/atrophy rateHippocampal/medial temporal...
Ventricular volume change/atrophy rateVentricular volume change/a...
Others Others
Other genetic, amyloid, tau, neuroimaging biomarkersOther genetic, amyloid, tau...
Physical examinationPhysical examination
Neurological examinationNeurological examination
Assessments by health care professional Assessments by health care ...
Date and frequency of healthcare appointmentsDate and frequency of healt...
Date and frequency that tests are administeredDate and frequency that tes...
Use of healthcare and social services Use of healthcare and socia...
Health services costsHealth services costs
Access to information related with the diseaseAccess to information relat...
Patient-related items Patient-related items
Living accommodationLiving accommodation
Patient health care resource utilisationPatient health care resourc...
Copayment patientCopayment patient
Caregiver-related items Caregiver-related items
Caregiver work status, impact, work days missedCaregiver work status, impa...
Caregiver sleepCaregiver sleep
Caregiver healthcare resource utilizationCaregiver healthcare resour...
Personal financial itemsPersonal financial items
Formal caregiver timeFormal caregiver time
Informal caregiver timeInformal caregiver time
Therapeutic treatment Therapeutic treatment
Starting medication for symptomatic ADStarting medication for sym...
Starting antipsychotic medicationStarting antipsychotic medi...
Other medications and dosageOther medications and dosage
Side effectsSide effects
Medical device useMedical device use
Other therapeutic interventionsOther therapeutic intervent...
Significant disease-related life events Significant disease-related...
Ability to driveAbility to drive
HospitalisationHospitalisation
InstitutionalisationInstitutionalisation
Need for assistance at homeNeed for assistance at home
Need for full time careNeed for full time care
SafetySafety
Premature loss of paid employmentPremature loss of paid empl...
Respite care take upRespite care take up
Sick leaveSick leave
Welfare support (monetary support)Welfare support (monetary s...
Guardianship measuresGuardianship measures
Patient quality of life Patient quality of life
Self-reported QoL/health utilitySelf-reported QoL/health ut...
Proxy-reported QoL/health utilityProxy-reported QoL/health u...
Impact on relationships and marriage strain/break upImpact on relationships and...
Maintaining ability to participate in hobbiesMaintaining ability to part...
Quality of the carer's and family's lives Quality of the carer's and ...
Caregiver-perceived burdenCaregiver-perceived burden
Caregiver co-morbiditiesCaregiver co-morbidities
Caregiver Quality of LifeCaregiver Quality of Life
Spouses' "duty" to careSpouses' "duty" to care
Quality of the patient-caregiver relationshipQuality of the patient-care...
Caregiver social supportCaregiver social support
Mortality and comorbidity Mortality and comorbidity
MortalityMortality
StrokeStroke
Cerebrovascular diseaseCerebrovascular disease
Coronary heart diseaseCoronary heart disease
DiabetesDiabetes
Other vascular diseasesOther vascular diseases
ObesityObesity
Parkinson's diseaseParkinson's disease
EpilepsyEpilepsy
Other neurological disordersOther neurological disorders
CancerCancer
Musculoskeletal diseasesMusculoskeletal diseases
Respiratory diseasesRespiratory diseases
Genitourinary diseasesGenitourinary diseases
Renal diseasesRenal diseases
Eye-related impairmentsEye-related impairments
Hearing impairmentsHearing impairments
Fractures and other traumaFractures and other trauma
DeliriumDelirium
Neuropsychiatric disordersNeuropsychiatric disorders
Frequent infectionsFrequent infections
FrailtyFrailty

Data Sources / AD Stages	MCI	Mild Dementia	Moderate Severe Dementia
LFAN
LFBC
LZAM
LZAN
IPCI
AUH
SIDIAP
SIDIGI
ReDeGi
H70
CaPS
CFAS
CFASII
ELSA
ICICLE_PD
Whitehall_II
G_Scotland
Airwave
UK_Biobank
EPIC_Norfolk
MRC_NSHD
BDR
Cam_CAN
LBC1936
Million_Women
AMPLE
OPDC_Discovery
Cygnus
CHARIOT
TRACK_HD
NIMROD
PROTECT
SABRE
NICOLA
Memento
PSI
Thessaloniki_cohort
The_4C_Study
SNAC_K
Rotterdam_Study
ReGAI
RECALL_HNR
Pre_Al
PharmaCog
Perugia
Oslo
NEST_DD
MRC_CFAS
Milan_cohort
Memora
MCI_GO
Actifcare
ADC
AddNeuroMed
AgeCoDe
AHR
DEM_PREV
Antwerp
ARWIBO
Athens_Cohort
CogLaus
CAIDE
CBAS
Coimbra
DCN
DCR

Data Sources / AD Stages	MCI	Mild Dementia	Moderate Severe Dementia
CaPS
CFAS
CFASII
ELSA
ICICLE_PD
Whitehall_II
G_Scotland
Airwave
UK_Biobank
EPIC_Norfolk
MRC_NSHD
BDR
Cam_CAN
LBC1936
Million_Women
AMPLE
OPDC_Discovery
Cygnus
CHARIOT
TRACK_HD
NIMROD
PROTECT
SABRE
NICOLA
NEST_DD
MRC_CFAS
AddNeuroMed
DCR
LFAN
LFBC
LZAM
LZAN
IPCI
PSI
The_4C_Study
Rotterdam_Study
Actifcare
ADC
AHR
ReGAI
PharmaCog
Perugia
Milan_cohort
ARWIBO
SIDIAP
SIDIGI
ReDeGi
DEM_PREV
Memento
Pre_Al
Memora
RECALL_HNR
AgeCoDe
DCN
SNAC_K
H70
Antwerp
Oslo
MCI_GO
Thessaloniki_cohort
Athens_Cohort
AUH
CogLaus
CAIDE
CBAS
Coimbra

AD Outcomes / AD Stages	MCI	Mild Dementia	Moderate Severe Dementia
Clinical diagnosis Clinical diagnosis
Subjective Memory Complaint
Subjective Cognitive Complaint
Mild Cognitive Impairment (MCI)
Amnestic MCI (aMCI)
Non-amnestic MCI (naMCI)
Dementia
Alzheimer's disease
Prodromal AD (pAD)
Preclinical AD
Other dementia subtypes (not AD) Other dementia subtypes (no...
Vascular dementia
Mixed dementia
Frontotemporal dementia
Dementia with Lewy bodies
Dementia in other diseases classified elsewhere
Disease severity and progression Disease severity and progre...
Staging severity of dementia
Global improvement/stability/ decline
Cognitive abilities Cognitive abilities
Memory
Language and communication
Visuospatial ability
Attention/Executive functions
Intelligence
Getting lost in own home
Not recognising family
Spatial awareness
Conscious awareness
Repeated questions
Losing the sense of who you are
Others
Functional ability and independence Functional ability and inde...
Clinical judgment on dependence/independence
Hygiene/bathing
Dressing
Toileting
Transferring
Walking
Mobility
Eating
Ability to use telephone
Shopping capacity
Food preparation
Housekeeping
Laundry
Transportation/Driving capacity
Responsibility for own medications
Financial capacity
Management of everyday technology
Supervision (preventing dangerous events)
Communication
Social engagement
Behavioural and neuropsychiatric symptoms Behavioural and neuropsychi...
Sleep disturbance/change in sleep-wake patterns/night time behaviours
Appetite/ eating disorders
Change in physical activity
Aggression
Agitation
Irritability
Disinhibition
Motor disturbances
Euphoria
Delusions
Hallucinations
Depression
Anxiety
Dysphoria
Apathy/indifference
Sight
Emotional issues
Sensory changes and challenges
Swallow reflex
Self-efficacy
Medical investigations Medical investigations
Genetic biomarkers Genetic biomarkers
APOE e4
Other variants
Amyloid Biomarkers Amyloid Biomarkers
CSF
PET
Plasma
Tau Biomarkers Tau Biomarkers
CSF
PET
Plasma
Functional neuroimaging biomarkers Functional neuroimaging bio...
FDG-PET
Structural neuroimaging biomarkers Structural neuroimaging bio...
Whole-brain volume change/atrophy rate
Hippocampal/medial temporal lobe volume change/atrophy rate
Ventricular volume change/atrophy rate
Others Others
Other genetic, amyloid, tau, neuroimaging biomarkers
Physical examination
Neurological examination
Assessments by health care professional Assessments by health care ...
Date and frequency of healthcare appointments
Date and frequency that tests are administered
Use of healthcare and social services Use of healthcare and socia...
Health services costs
Access to information related with the disease
Patient-related items Patient-related items
Living accommodation
Patient health care resource utilisation
Copayment patient
Caregiver-related items Caregiver-related items
Caregiver work status, impact, work days missed
Caregiver sleep
Caregiver healthcare resource utilization
Personal financial items
Formal caregiver time
Informal caregiver time
Therapeutic treatment Therapeutic treatment
Starting medication for symptomatic AD
Starting antipsychotic medication
Other medications and dosage
Side effects
Medical device use
Other therapeutic interventions
Significant disease-related life events Significant disease-related...
Ability to drive
Hospitalisation
Institutionalisation
Need for assistance at home
Need for full time care
Safety
Premature loss of paid employment
Respite care take up
Sick leave
Welfare support (monetary support)
Guardianship measures
Patient quality of life Patient quality of life
Self-reported QoL/health utility
Proxy-reported QoL/health utility
Impact on relationships and marriage strain/break up
Maintaining ability to participate in hobbies
Quality of the carer's and family's lives Quality of the carer's and ...
Caregiver-perceived burden
Caregiver co-morbidities
Caregiver Quality of Life
Spouses' "duty" to care
Quality of the patient-caregiver relationship
Caregiver social support
Mortality and comorbidity Mortality and comorbidity
Mortality
Stroke
Cerebrovascular disease
Coronary heart disease
Diabetes
Other vascular diseases
Obesity
Parkinson's disease
Epilepsy
Other neurological disorders
Cancer
Musculoskeletal diseases
Respiratory diseases
Genitourinary diseases
Renal diseases
Eye-related impairments
Hearing impairments
Fractures and other trauma
Delirium
Neuropsychiatric disorders
Frequent infections
Frailty

AD Measurements / Data Sources	LFANLFAN	LFBCLFBC	LZAMLZAM	LZANLZAN	IPCIIPCI	AUHAUH	SIDIAPSIDIAP	SIDIGISIDIGI	ReDeGiReDeGi	H70H70	CaPSCaPS	CFASCFAS	CFASIICFASII	ELSAELSA	ICICLE_PDICICLE_PD	Whitehall_IIWhiteha...	G_ScotlandG_Scotland	AirwaveAirwave	UK_BiobankUK_Biobank	EPIC_NorfolkEPIC_No...	MRC_NSHDMRC_NSHD	BDRBDR	Cam_CANCam_CAN	LBC1936LBC1936	Million_WomenMillion...	AMPLEAMPLE	OPDC_DiscoveryOPDC_Di...	CygnusCygnus	CHARIOTCHARIOT	TRACK_HDTRACK_HD	NIMRODNIMROD	PROTECTPROTECT	SABRESABRE	NICOLANICOLA	MementoMemento	PSIPSI	Thessaloniki_cohortThessal...	The_4C_StudyThe_4C_...	SNAC_KSNAC_K	Rotterdam_StudyRotterd...	ReGAIReGAI	RECALL_HNRRECALL_HNR	Pre_AlPre_Al	PharmaCogPharmaCog	PerugiaPerugia	OsloOslo	NEST_DDNEST_DD	MRC_CFASMRC_CFAS	Milan_cohortMilan_c...	MemoraMemora	MCI_GOMCI_GO	ActifcareActifcare	ADCADC	AddNeuroMedAddNeur...	AgeCoDeAgeCoDe	AHRAHR	DEM_PREVDEM_PREV	AntwerpAntwerp	ARWIBOARWIBO	Athens_CohortAthens_...	CogLausCogLaus	CAIDECAIDE	CBASCBAS	CoimbraCoimbra	DCNDCN	DCRDCR
Disease severity and progression Disease severity and progre...
Clinical Dementia Rating (CDR)Clinical Dementia Rating (CDR)
Clinical Dementia Rating Scale - sum of boxes (CDR-SB)Clinical Dementia Rating Scale...
Clinical Dementia Rating- Global scoring (CDR-G)Clinical Dementia Rating- Glob...
Clinical Global Impression (CGI)Clinical Global Impression (CGI)
FDA Clinician's Interview Based Impression of Change (CIBIC)FDA Clinician's Interview Base...
Clinician's Interview Based Impression of Change (CIBIC) + Plus version (CIBIC+)Clinician's Interview Based Im...
Reisberg's Global Deterioration Scale (GDS)Reisberg's Global Deterioratio...
OthersOthers
Cognitive abilities Cognitive abilities
Mini Mental State Examination (MMSE)Mini Mental State Examination ...
Montreal Cognitive Assessment (MoCA)Montreal Cognitive Assessment ...
Modified Mini Mental Examination (mMMS)Modified Mini Mental Examinati...
Modified Mini-Mental State Examination (3MS)Modified Mini-Mental State Exa...
Paired-associate learning: Favourites (NIH examiner/toolbox)Paired-associate learning: Fav...
Mini-CogMini-Cog
Addenbrooke's Clinical Examination (ACE)Addenbrooke's Clinical Examina...
Addenbrooke's Clinical Examination - Revised (ACE- R)Addenbrooke's Clinical Examina...
ADAS-Cog-115ADAS-Cog-115
ADAS-Cog-13ADAS-Cog-13
ADAS-Cog14ADAS-Cog14
The Repeatable Battery for the Assessment of Neuropsychological status (RBANS)The Repeatable Battery for the...
The Eriksen Flanker test (NIH examiner/toolbox)The Eriksen Flanker test (NIH ...
Severe impairment battery (SIB)Severe impairment battery (SIB)
Trail Making Test - Trail ATrail Making Test - Trail A
Trail Making Test - Trail BTrail Making Test - Trail B
Boston Naming Test (BNT)Boston Naming Test (BNT)
Everyday cognition (Ecog), Mail-In Cognitive Function Screening Instrument (MCFSI) - caregiver & patient versionsEveryday cognition (Ecog), Mai...
Informant Questionnaire on Cognition Decline in the Elderly (IQCODE)Informant Questionnaire on Cog...
Dot counting (NIH examiner/toolbox)Dot counting (NIH examiner/too...
Four Mountains TaskFour Mountains Task
Free and Cued Selective Reminding Test (FCSRT)Free and Cued Selective Remind...
Virtual reality supermarket trolleyVirtual reality supermarket tr...
PACC scalePACC scale
UK Biobank cognitive assessment battery 6UK Biobank cognitive assessmen...
CANTAB computerized testsCANTAB computerized tests
COGSTATE computerised testsCOGSTATE computerised tests
CDR computerised assessmentsCDR computerised assessments
Modified Perceived Deficit QuestionnaireModified Perceived Deficit Que...
Wechsler Memory ScaleWechsler Memory Scale
Wechsler Memory Scale RevisedWechsler Memory Scale Revised
Consortium to Establish a Registry for Alzheimer's disease Neuropsychological Assessment Battery (CERAD-NAB)Consortium to Establish a Regi...
Rey Auditory Verbal Learning Test (RAVLT)Rey Auditory Verbal Learning T...
California Verbal Learning Test (CAVLT)California Verbal Learning Tes...
Memory Function Questionnaire (MFQ)Memory Function Questionnaire ...
Cognitive Complaints Inventory (CCI)Cognitive Complaints Inventory...
Memory Assessment Clinic-Q) (MAC-Q)Memory Assessment Clinic-Q) (M...
Cognitive Functioning IndexCognitive Functioning Index
Memory Impairment Screen (MIS)Memory Impairment Screen (MIS)
General Practitioner Assessment of Cognition (GPcog)General Practitioner Assessmen...
Allen cognitive level screening toolAllen cognitive level screenin...
Allen cognitive performance testAllen cognitive performance test
Arizona battery for communication disorders of dementia Information-memory-concentration testArizona battery for communicat...
Middlesex elderly assessment of mental state (MEAMS)Middlesex elderly assessment o...
Neurobehavioral cognitive status examinationNeurobehavioral cognitive stat...
Rivermead behavioural memory test (RBMT)Rivermead behavioural memory t...
Williams memory assessment scalesWilliams memory assessment scales
Kendrick battery for detection of dementia in the elderlyKendrick battery for detection...
Kendrick cognitive tests for the elderlyKendrick cognitive tests for t...
Lowenstein OT cognitive assessment (LOTCA)Lowenstein OT cognitive assess...
Language disorder of dementiaLanguage disorder of dementia
Stroop testStroop test
Digit span testDigit span test
VAT testVAT test
Modified Perceived Deficit QuestionnaireModified Perceived Deficit Que...
OthersOthers
Functional ability and independence Functional ability and inde...
Alzheimer's Disease Cooperative Study/Activities of Daily Living for MCI(ADCS-MCI-ADL)Alzheimer's Disease Cooperativ...
Alzheimer's Disease Cooperative Study - Activities of Daily Living Scale (ADSC-ADL)Alzheimer's Disease Cooperativ...
Day-Out Task (Performance based)Day-Out Task (Performance based)
Cambridge Behavioural Inventory Revised (CBI-R)Cambridge Behavioural Inventor...
Katz ADLKatz ADL
Physical Self-Maintenance Scale (PSMS)Physical Self-Maintenance Scal...
Disability Assessment in Dementia (DAD)Disability Assessment in Demen...
Functional Activities Questionnaire (FAQ)Functional Activities Question...
Barthel IndexBarthel Index
Functional Assessment Staging (FAS)Functional Assessment Staging ...
Lawton IADL ScaleLawton IADL Scale
Blessed Dementia Rating Scale (BDRS)Blessed Dementia Rating Scale ...
Brody's IADL ScaleBrody's IADL Scale
Bristol Activities of Daily Living Scale (BADLs)Bristol Activities of Daily Li...
Dependency Scale (DS)Dependency Scale (DS)
Every day Problems Test (EPT)Every day Problems Test (EPT)
Amsterdam ADL QuestionnaireAmsterdam ADL Questionnaire
Functional Capacity IndexFunctional Capacity Index
Financial Capacity Index (FCI)Financial Capacity Index (FCI)
University of California San Diego Performance-Based Skills Assessment (UCSD-UPSA)University of California San D...
Management of Everyday Technology Assessment Driving Habits QuestionnaireManagement of Everyday Technol...
OthersOthers
Behavioural symptoms & Neuropsychiatric Symptoms Behavioural symptoms & Neur...
Behavioural Pathology in Alzheimer's Disease (BEHAVE-AD)Behavioural Pathology in Alzhe...
Dimension Apathy Scale (DAS)Dimension Apathy Scale (DAS)
Columbia University Scale for Psychopathology in AD (CUSPAD)Columbia University Scale for ...
Neuropsychiatric Inventory (NPI)Neuropsychiatric Inventory (NPI)
NPI-12 (original +sleep +appetite change +caregiver stress)NPI-12 (original +sleep +appet...
Neuropsychiatric Inventory Questionnaire (NPI-Q) (informant)Neuropsychiatric Inventory Que...
Neuropsychiatric Inventory (Nursing home) (NPI-NH)Neuropsychiatric Inventory (Nu...
Hamilton Rating Scale for Depression (HAD)Hamilton Rating Scale for Depr...
Cohen-Mansfield Agitation Inventory (CMAI)Cohen-Mansfield Agitation Inve...
Cornell Scale for Depression in Dementia (CSDD)Cornell Scale for Depression i...
Geriatric Depression Scale (GDS)Geriatric Depression Scale (GDS)
Rating Anxiety in Dementia (RAID)Rating Anxiety in Dementia (RAID)
Brief Psychiatric Rating Scale (BPRS)Brief Psychiatric Rating Scale...
OthersOthers
Use of healthcare and social services Use of healthcare and socia...
RUDRUD
RUD LiteRUD Lite
Resource Use Inventory (RUI)Resource Use Inventory (RUI)
Client Service Receipt Inventory (CSRI)Client Service Receipt Invento...
Direct medical costs Direct medical costs
Hospital inpatient costsHospital inpatient costs
Hospital outpatient costsHospital outpatient costs
A&E costsA&E costs
Ambulance costsAmbulance costs
PrescriptionsPrescriptions
Direct non-medical costsDirect non-medical costs
Long term/ institutional care costsLong term/ institutional care ...
OthersOthers
Quality of life Quality of life
Dementia specific QoL measures Dementia specific QoL measures
Quality of Life in Alzheimer's Disease (QoL-AD) (informant- and self-report versions)Quality of Life in Alzheimer's...
Dementia Quality of Life (DEMQoL and DEMQoL Proxy)Dementia Quality of Life (DEMQ...
The Dementia Quality of Life Instrument (DQoL)The Dementia Quality of Life I...
Bath Assessment of Subjective Quality of Life in Dementia (BASQID)Bath Assessment of Subjective ...
Alzheimer's Disease Related Quality of Life (ADRQL)Alzheimer's Disease Related Qu...
Modified COOP/WONCA chartsModified COOP/WONCA charts
Progressive Deterioration Scale (PDS)Progressive Deterioration Scal...
Patient Activity Scale -AD plus the Modified Apparent Emotion Scale (PES+AD+AES)Patient Activity Scale -AD plu...
Activity and Affect Indicators of QoL (AAIQoL)Activity and Affect Indicators...
Community Dementia Quality of Life Profile (CDQLP)Community Dementia Quality of ...
Cornell-Brown Scale for Quality of Life in Dementia (CBS)Cornell-Brown Scale for Qualit...
Psychological Well-Being in Cognitively Impaired Persons (PWB-CIP)Psychological Well-Being in Co...
Generic QoL measures Generic QoL measures
EuroQoL - 5 dimensions, 3 levels (EQ-5D-3L) (previously known as EQ-5D)EuroQoL - 5 dimensions, 3 leve...
EuroQoL - 5 dimensions, 5 levels (EQ-5D-5L)EuroQoL - 5 dimensions, 5 leve...
Health Utility Index 1 (HUI 1)Health Utility Index 1 (HUI 1)
Health Utility Index 2 (HUI 2)Health Utility Index 2 (HUI 2)
Health Utility Index 3 (HUI 3)Health Utility Index 3 (HUI 3)
Short form 36 (SF36)Short form 36 (SF36)
Short form 12 (SF12)Short form 12 (SF12)
Short Form 6 (SF6)Short Form 6 (SF6)
World Health Organisation Quality of Life - Brief version (WHOQoL -Brief)World Health Organisation Qual...
Visual analogue scale (EQ-VAS)Visual analogue scale (EQ-VAS)
Quality of life in late-stage dementia (QUALID)Quality of life in late-stage ...
A dementia specific quality of life questionnaire by professionals (QUALIDEM)A dementia specific quality of...
Quality of Well-being Scale (QWB-SA)Quality of Well-being Scale (Q...
ICEpop CAPability instrument for Older people (ICECAP-O)ICEpop CAPability instrument f...
Duke Health Profile (DHP)Duke Health Profile (DHP)
The Recovering Quality of Life - 10 items (ReQoL-10)The Recovering Quality of Life...
The Recovering Quality of Life - 20 items (ReQoL-20)The Recovering Quality of Life...
The CORE Outcome Measure (CORE-OM)The CORE Outcome Measure (CORE...
OthersOthers
Quality of the carer's and family's lives Quality of the carer's and ...
Zarit Burden Interview (ZBI)Zarit Burden Interview (ZBI)
Sense of Competence Scale - SCQ (27) and short sense of competence scale SSCQ (7) Relative Stress Scale (RSS)Sense of Competence Scale - SC...
Neuropsychiatric Inventory with Caregiver Distress Scale (NPI-D)Neuropsychiatric Inventory wit...
Neuropsychiatric Inventory in Nursing homes (NPI- NH) Occupational Disruption Domain Brief Symptom Inventory (BSI)Neuropsychiatric Inventory in ...
General Health Questionnaire (GHQ)General Health Questionnaire (...
Centre for Epidemiological Studies - Depression Scale (CES-D)Centre for Epidemiological Stu...
Sense of Coherence Scale (SOC-13)Sense of Coherence Scale (SOC-13)
Locus of Control of Behaviour ScaleLocus of Control of Behaviour ...
Hamilton Depression Rating Scale (HADS)Hamilton Depression Rating Sca...
Maslach Burnout Inventory (MBI)Maslach Burnout Inventory (MBI)
Caregiver Activity Survey (CAS)Caregiver Activity Survey (CAS)
Caregiver Activities Time Survey (CATS)Caregiver Activities Time Surv...
Resource Utilisation in Dementia(RUD)Resource Utilisation in Dement...
RUD LiteRUD Lite
Caregiver specific QoL measures Caregiver specific QoL meas...
Carer Quality of Life (two parts: the CarerQoL-7D and the CarerQoL-VAS)Carer Quality of Life (two par...
Caregiver specific QoL measures Caregiver specific QoL meas...
Any of the generic QoL measures listed in patient QoL section might be used as measures hereAny of the generic QoL measure...
OthersOthers
Mortality and comorbidity Mortality and comorbidity
Charlson Comorbidity IndexCharlson Comorbidity Index
Frailty IndexFrailty Index
OthersOthers

Comments:

Frecuency (every X months/person)
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